Comments for Disability² http://www.disabilitypride.com the intersection of parenting with a disability and parenting kids with disabilities Mon, 12 May 2008 00:37:26 +0000 http://wordpress.org/?v=2.5 Comment on One of the many joys of crip parenting by Parenting Articles http://www.disabilitypride.com/2006/02/23/one-of-the-many-joys-of-crip-parenting/#comment-11570 Parenting Articles Tue, 06 May 2008 03:49:42 +0000 http://www.disabilitypride.com/2006/02/23/one-of-the-many-joys-of-crip-parenting/#comment-11570 I really touched by the relationship you showed to your daughter. It is very inspiring to all parents that have also children with disability. Your daughter is the luckiest of all to have a mom like you. -Jan I really touched by the relationship you showed to your daughter. It is very inspiring to all parents that have also children with disability. Your daughter is the luckiest of all to have a mom like you.

-Jan

]]> Comment on Kevorkian is free to kill again by bob http://www.disabilitypride.com/2007/06/02/kevorkian-is-free-to-kill-again/#comment-9095 bob Fri, 08 Feb 2008 13:21:39 +0000 http://www.disabilitypride.com/2007/06/02/kevorkian-is-free-to-kill-again/#comment-9095 Kervorkian is evil. Plain and simple. It's just too bad that, as a culture, we can't get off our pansy asses and do something about someone we think is evil. Kervorkian is evil. Plain and simple. It’s just too bad that, as a culture, we can’t get off our pansy asses and do something about someone we think is evil.

]]> Comment on After losing legs, Reggie Colton found a role model who inspired him by Sonji Bennett http://www.disabilitypride.com/2006/03/15/after-losing-legs-reggie-colton-found-a-role-model-who-inspired-him/#comment-6514 Sonji Bennett Tue, 13 Nov 2007 02:27:36 +0000 http://www.disabilitypride.com/2006/03/15/after-losing-legs-reggie-colton-found-a-role-model-who-inspired-him/#comment-6514 Hello Reg, glad too see you and the family doing well. Take care may God Bless you. Hello Reg, glad too see you and the family doing well. Take care may God Bless you.

]]> Comment on One of the many joys of crip parenting by Bonnie http://www.disabilitypride.com/2006/02/23/one-of-the-many-joys-of-crip-parenting/#comment-5661 Bonnie Thu, 11 Oct 2007 02:58:52 +0000 http://www.disabilitypride.com/2006/02/23/one-of-the-many-joys-of-crip-parenting/#comment-5661 Carrie...I have met so many lawyers and fellow parents just looking for an agency that could help them. I had two non profits in mind over 30 years ago....I volunteered in a new one that could be similar to helping parents, however among funding crunches all the agencies have had to turn parents away, because of the legal ramifications....bull, I said, I will finish school....well, I haven't gotten done....but I am going to.....yes I am. You....are.....so....awesome, trully! I have had multiple disabilities since I was a teen....however, if someone had noticed that I went through the windshield 4 times, of listened to me when I said I couldn't hear them (and I couldn't), then they would have known that most of our disagreements were based upon their refusal to believe that my hearing disability really needed attention. Just wanted you to know that in the past 12 years, my children have been turned upside down and inside out, because of the misconceptions. They are A students, now both graduating from high school, one has been working into his career since he was 15. The other has been volunteering and now working. After struggling to survive the discension, I am finally being accomodated in certain settings, but not in others. Like at Federal Housing, no, but in court, yes. At college, yes, but at my children's school I have gone through policing me, running my children to Soc Services to make sure that I am a good deaf parent (of which I got recommendations from the agency themselves, who had humiliated my children through thick and thin....and you know what? Because of hearing about your success....I am energized again to face system(s) that still want to be elephants in their memory and dwell on the past. So all of you disabled parents, remember one thing.....and you too Carrie......it is all worth the work and artists we are......because turn the tables; and the people who are judging you, well, they would last a minute in any of these agencies, raising their kids....We are whole from the heart! Thanx, Carrie! Carrie…I have met so many lawyers and fellow parents just looking for an agency that could help them. I had two non profits in mind over 30 years ago….I volunteered
in a new one that could be similar to helping parents, however among funding crunches all the agencies have had to turn parents away, because of the legal ramifications….bull, I said, I will finish school….well, I haven’t gotten done….but I am going to…..yes I am. You….are…..so….awesome, trully! I have had multiple disabilities since I was
a teen….however, if someone had noticed that I went through the windshield 4 times, of listened to me when I said I couldn’t hear them (and I couldn’t), then they would have known that most of our disagreements were based upon their refusal to believe that my hearing disability really needed attention. Just wanted you to know that in the past 12 years, my children have been turned upside down and inside out, because of the misconceptions. They are A students, now both graduating from high school, one has been working into his career since he was 15. The other has been volunteering and now working. After struggling to survive the discension, I am finally being accomodated in certain settings, but not in others. Like at Federal Housing, no, but in court, yes. At college, yes, but at my children’s school I have gone through policing me, running my children to Soc Services to make sure that I am a good deaf
parent (of which I got recommendations from
the agency themselves, who had humiliated my children through thick and thin….and you know what?
Because of hearing about your success….I am energized again to face system(s) that still want to be elephants in their memory and dwell on the past. So all of you disabled parents, remember one thing…..and you too Carrie……it is all worth the work and artists we are……because turn the tables; and the people who are judging you,
well, they would last a minute in any of these agencies, raising their kids….We are
whole from the heart! Thanx, Carrie!

]]> Comment on One of the many joys of crip parenting by Rachel http://www.disabilitypride.com/2006/02/23/one-of-the-many-joys-of-crip-parenting/#comment-5290 Rachel Mon, 24 Sep 2007 22:34:53 +0000 http://www.disabilitypride.com/2006/02/23/one-of-the-many-joys-of-crip-parenting/#comment-5290 woman, you have the coolest kids! (I just found your blog, and I'm commenting at work. Don't tell ...!) woman, you have the coolest kids!

(I just found your blog, and I’m commenting at work. Don’t tell …!)

]]> Comment on Crips v. Penguins by Carrie Ann Lucas http://www.disabilitypride.com/2006/03/05/crips-v-penguins/#comment-5185 Carrie Ann Lucas Tue, 18 Sep 2007 22:55:47 +0000 http://www.disabilitypride.com/2006/03/05/crips-v-penguins/#comment-5185 My version is captioned (closed captioned, not subtitled). I was disappointed that I couldn't get open captioning anywhere, so had to wait until it came out on DVD to watch it. My version is captioned (closed captioned, not subtitled). I was disappointed that I couldn’t get open captioning anywhere, so had to wait until it came out on DVD to watch it.

]]> Comment on Crips v. Penguins by misscripchick http://www.disabilitypride.com/2006/03/05/crips-v-penguins/#comment-5183 misscripchick Tue, 18 Sep 2007 19:28:42 +0000 http://www.disabilitypride.com/2006/03/05/crips-v-penguins/#comment-5183 did you notice that murderball wasn't captioned?? that really disappointed me, the fact that it's a movie about disability and all. still a good film though, one of my favs. did you notice that murderball wasn’t captioned?? that really disappointed me, the fact that it’s a movie about disability and all. still a good film though, one of my favs.

]]> Comment on pitython addendum by Carrie Ann Lucas http://www.disabilitypride.com/2007/09/04/pitython-addendum/#comment-4980 Carrie Ann Lucas Fri, 07 Sep 2007 21:11:01 +0000 http://www.disabilitypride.com/2007/09/04/pitython-addendum/#comment-4980 I don't know of any specific case law that supports your position, and have heard of some that has held that schools are not required to provide these accommodations. If the child has disabilities, the parent and the child have rights under special education laws that could entitle the child to transportation, regardless of distance to school. In the absence of the child having a disability, the parent can request a reasonable modification of policies, practices and procedures. There are a lot of factors that go into whether a modification is reasonable, and whether the school is providing program access, but if there is a bus that passes the family's house, for example, it may be a reasonable modification for the bus to stop to pick up the child. If the parent lives in Colorado, she can contact the Center for Rights of Parents with Disabilities at 303.839.1775 for help. I don’t know of any specific case law that supports your position, and have heard of some that has held that schools are not required to provide these accommodations.

If the child has disabilities, the parent and the child have rights under special education laws that could entitle the child to transportation, regardless of distance to school.

In the absence of the child having a disability, the parent can request a reasonable modification of policies, practices and procedures. There are a lot of factors that go into whether a modification is reasonable, and whether the school is providing program access, but if there is a bus that passes the family’s house, for example, it may be a reasonable modification for the bus to stop to pick up the child.

If the parent lives in Colorado, she can contact the Center for Rights of Parents with Disabilities at 303.839.1775 for help.

]]> Comment on pitython addendum by Joan Curtiss http://www.disabilitypride.com/2007/09/04/pitython-addendum/#comment-4976 Joan Curtiss Fri, 07 Sep 2007 19:11:36 +0000 http://www.disabilitypride.com/2007/09/04/pitython-addendum/#comment-4976 I have a mom who is blind and has problems walking her kindergartener to school. The bus says the child lives too close to the school for a bus to pick her up and take her home. Do you know of any caselaw that the school should accommodate the blind mom even though the child is sighted? Sounds discriminatory to me. I have a mom who is blind and has problems walking her kindergartener to school. The bus says the child lives too close to the school for a bus to pick her up and take her home. Do you know of any caselaw that the school should accommodate the blind mom even though the child is sighted? Sounds discriminatory to me.

]]> Comment on those dammed boots by Penny http://www.disabilitypride.com/2007/09/03/those-dammed-boots/#comment-4930 Penny Wed, 05 Sep 2007 03:47:03 +0000 http://www.disabilitypride.com/2007/09/03/those-dammed-boots/#comment-4930 It's a bit like beauty pageants constantly protesting, "But we're a scholarship competition! We give so much money for young women to go to college!" Okaaaaaaay, but if they really cared about young women, they could do all that <i>without</i> the bikinis, the heels, the evening gowns.... If the MDA really cared about the lives of people with neuromuscular disease, they would surely end the pitython, dump JL, apologize for forty-two years of inflicting pain, and get on with doing whatever good they can do, <i>led</i> by the individuals and families affected. It’s a bit like beauty pageants constantly protesting, “But we’re a scholarship competition! We give so much money for young women to go to college!” Okaaaaaaay, but if they really cared about young women, they could do all that without the bikinis, the heels, the evening gowns….

If the MDA really cared about the lives of people with neuromuscular disease, they would surely end the pitython, dump JL, apologize for forty-two years of inflicting pain, and get on with doing whatever good they can do, led by the individuals and families affected.

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