Our lives have value, and we are not better off dead than disabled

Young girl in a wheelchair protesting Peter Singer in San Francisco in June 2002, with a sign saying "My name is Heather and I AM a person."

This week was cri du chat awareness week (along with a number of other disabilities). While disability awareness should not be a contest, and disability labels are not what matters, people with severe congenital disabilities, including chromosomal disorders, are facing an onslaught from bioethicists like Peter Singer who advocates for their death, deeming them better […]

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White allies are important — if we are really allies

A white man is pictured punching an African American marcher while another white bar patron wind up to throw object at marchers

I am sickened about what happened to Freddie Gray (and Naeschylus Vinzant, Jessie Hernandez, Jack Jacquez, Tony Robinson, Anthony Hill,  Terrance Moxley, Charly Keundeu Keunang, Terrance Kellom, Hector Morejon, William Chapman II, Walter Scott, Lavall Hall, Eric Harris, Phillip White, Nicholas Thomas, Tanisha Anderson, Rumain Brisbon,Tamir Rice, Akai Gurley, Kajieme Powell, Ezell Ford, Dante Parker, Michael Brown, John Crawford III, Tyree Woodson, Eric Garner, Victor White III, Yvette Smith, McKenzie Cochran, Jordan Baker — all people of […]

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The promise of Olmstead and the ADA realized

field of multicolored flowers

It is like the dawning of spring. My teen daughter has multiple disabilities, and needs home health care to assist with activities of daily living.  She is losing her home health agency services, and I requested and received accommodations from the State of Colorado to access Consumer Directed Attendant Support Services (CDASS) a program currently […]

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Rare disease day

an African American woman wearing blue jeans, with a western belt with silver butterflies.

Today is rare disease awareness day. I always have somewhat mixed feelings about disease awareness, because the need for accessibility is universal. We need to meet everyone’s needs, and have environmental, medical, sensory, emotional, and social access for everyone, regardless of a disability label. With social media, our rare conditions do not seem so rare […]

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Yes we travel — whenever possible

Grand Teton mountains rising from the prairie int he distance, with three smiling teens standing in the foreground. The middle teen uses a wheelchair.

I love to travel.  I love seeing new places, trying new food, learning about cultural differences, and expanding my own world view. As a kid, my family traveled some, and we only road tripped.  Because my father was in the Marne Corps, we moved between California and Colorado several times. My father’s family, and my […]

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